Thank You!

Thank you for your generosity in supporting the Rare Disease community and making the first annual Give Rare Day a success!

We are only scratching the surface of what we can accomplish by working together and your generous donations will help eliminate the challenges of rare disease. With 1 in 10 Americans affected by rare disease imagine what we can accomplish if everyone participated in Give Rare!

Donor Survey Nonprofit Survey


National Leaderboard

Donors Amount Given

1

FIBROMUSCULAR DYSPLASIA SOCIETY OF AMERICA INC

133 $38,158

2

PITT HOPKINS RESEARCH FOUNDATION

195 $22,715

3

ECD GLOBAL ALLIANCE INC

93 $17,883

4

HARMONY 4 HOPE

96 $17,693

5

Children's Craniofacial Association

68 $13,498

6

Prader-Willi Syndrome Association (USA)

110 $11,290

7

TEAM HOPEFULL

97 $7,024

8

MDDS BALANCE DISORDER FOUNDATIONINC

83 $6,935

9

Bridge the Gap - SYNGAP Education and Research Foundation

49 $6,508

10

BEAUTIFUL YOU MRKH FOUNDATION - BYMRKH

78 $5,799

11

INTERNATIONAL WAGR SYNDROME ASSOCIATION

51 $3,674

12

CURE SANFILIPPO FOUNDATION

65 $3,621

13

PSC PARTNERS SEEKING A CURE

52 $3,448

14

Noonan Syndrome Foundation

65 $3,335

15

AUTOINFLAMMATORY ALLIANCE INC

38 $3,238

16

TRANSLATIONAL GENOMICS RESEARCH INSTITUTE FOUNDATION

55 $2,945

17

INTERNATIONAL FOUNDATION FOR CDKL5 RESEARCH

31 $2,530

18

SAVE BABIES THROUGH SCREENING FOUNDATION INC

26 $2,447

19

XLH NETWORK INC

24 $1,687

20

COSTELLO SYNDROME FAMILY NETWORK C SFN

19 $1,288

21

SAVE JON

23 $1,281

22

LITTLE MISS HANNAH FOUNDATION

15 $1,270

23

HOPE 4 HUNTER

26 $867

24

DYSKERATOSIS CONGENITA OUTREACH INC

8 $825

25

RELAPSING POLYCHONDRITIS AWARENESS AND SUPPORT FOUNDATION

15 $565

26

JONAHS JUST BEGUN-FOUNDATION TO CURE SANFILIPPO INC

8 $550

27

The Parent Project for Muscular Dystrophy Research

10 $330

28

U R OUR HOPE

9 $290

29

REAGANS REACH INC

5 $275

30

ALPORT SYNDROME FOUNDATION INC

5 $245

31

MOEBIUS SYNDROME FOUNDATION

4 $210

32

PRISMS INC

5 $185

33

National Ataxia Foundation, Inc

3 $154

34

CORNEAL DYSTROPHY FOUNDATION

4 $150

35

HUNTER SYNDROME FOUNDATION

1 $125

36

PTEN HAMARTOMA TUMOR SYNDROME FOUNDATION

4 $120

37

CADASIL ASSOCIATION

7 $115

38

FPIES FOUNDATION

3 $115

39

FOUNDATION FOR PRADER WILLI RESEARCH

1 $100

40

WILLIAMS SYNDROME ASSOCIATION INC

3 $80

41

APFED

2 $64

42

MLD FOUNDATION

2 $60

43

WILLIAMS SYNDROME CHANGING LIVES FOUNDATION

2 $50

44

LET THEM BE LITTLE X2 INC

1 $50

45

UPLIFTING ATHLETES INC

1 $40

46

NATIONAL MPS SOCIETY INC

1 $35

47

XERODERMA PIGMENTOSUM FAMILY SUPPORT GROUP

1 $25

48

Central Ohio Chapter of the National Hemophilia Foundation

1 $10

49

KIDZ1STFUND INC

1 $10

50

ALAGILLE SYNDROME ALLIANCE

0 $0
*Numbers and leaderboard will be updated every 15-20 mins See All Nonprofits


Large Non-Profit Leaderboard
Small Non-Profit Leaderboard
RARE Champions Leaderboard


Giving Day Sponsors